Customer Success Stories

A Rare Condition. A Global Community. One Platform.

Red Badger designed, built and continues to support a fast, accessible, multilingual digital platform for the NR2F1 Foundation, a global community supporting families and researchers connected to BBSOAS, a rare neurodevelopmental disorder.


 

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500+ families
supported through a new global digital platform

50+ countries
connected with accessible, multilingual content.

30% increase
In event attendance following launch

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The Challenge:

A small foundation, a global community, and a website that couldn't keep up.


 The NR2F1 Foundation supports 500 diagnosed families in more than 50 countries and is often the first port of call for newly diagnosed families, clinicians and scientific researchers learning about Bosch-Boonstra-Schaaf Optic Atrophy Syndrome (BBSOAS).

Their existing website was costly to maintain, hard to update, and didn't follow accessibility, SEO or internationalisation best practices. This was a real problem when most BBSOAS patients are visually impaired and the audience spans seven languages and dozens of countries.

Red Badger was brought in to design and build a sustainable platform: a website the Foundation's small team could run themselves, that performed for users with assistive technologies, and that helped families find the Foundation in the first place.

Our approach:

Discovery first, then a platform built for low-cost ownership.

We started with a discovery phase, workshops and interviews with the Foundation's board,  to map the key audiences, their needs and frustrations, and the technical goals for the new platform.

That shaped a customer-centric plan organised around clear objectives:

  • Raise awareness of the NR2F1 Foundation and the work they do

  • Provide information about the NR2F1 gene and BBSOAS

  • Provide resources for families living with BBSOAS

  • Guide families on how to register in the biorepository, which is a database of information about people with BBSOAS for research purposes

  • Provide resources for healthcare professionals, researchers, and pharmaceutical companies

  • Provide a blog for the NR2F1 Foundation to share updates and stories

  • Provide a donation page for people to support the NR2F1 Foundation

 

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NR2F1 - Register With Us

The results:

A React platform built for accessibility, SEO and near-zero maintenance.



EASY TO MAINTAIN: Contentful, part of our solution stack, gives developers, content creators and editors a flexible space to work together,so the Foundation's team can update content independently.


ACCESSIBLE TO ALL USERS: Because BBSOAS often affects vision, the site is fully compatible with screen readers and meets WCAG 2.2 AA. UX and UI were user-tested and iterated for every device.


HANDLES INTERNATIONALISATION AND LOCALISATION: Content is published in seven languages with localised URL paths and language-appropriate date and number formatting.


SEO-FIRST ARCHITECTURE: Server-side rendering, structured data and semantic HTML make the Foundation easier for search engines to discover. This is critical for newly diagnosed families finding help.
 

Don't just take our word for it....

“As President of the Foundation, I am truly humbled by the kindness and professionalism shown by the team. As a mother of a child with BBSOAS, I am deeply grateful for the support we've received. It is a tremendous comfort to know that there are people fighting for my daughter and for all the families impacted by BBSOAS.”

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President, The NR2F1 Foundation Jennifer Coughlin

KEY TAKEAWAYS

Context: The NR2F1 Foundation supports families, clinicians and researchers affected by BBSOAS, a rare neurodevelopmental disorder. Its existing website was expensive to maintain, difficult to update and inaccessible for a global audience, many of whom have visual impairments.

Approach: Designed and built a fast, accessible, multilingual platform centred around the Foundation's diverse audiences, combining discovery, user research and Contentful to create a sustainable website that volunteers could manage independently.

Results: Increased awareness of the Foundation's work, drove a 30% uplift in event attendance, improved discoverability for newly diagnosed families, and delivered an accessible platform supporting users in seven languages across more than 50 countries.

Ways of working: Delivered the platform as a collaborative social impact initiative, combining design, engineering and accessibility expertise to create an open, low-maintenance solution that the Foundation can continue to evolve independently.

We solve complicated problems in complex places

Red Badger is the product transformation consultancy for blue chips. Our product design capabilities and technical pedigree build high-performance digital platforms that get you closer to your customers and embed new ways of working. Your journey to an agile, innovative digital product organisation starts today.

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